About PR

Palindromic Rheumatism is so called because it is a type of rheumatism (or arthritis) which ‘comes and goes’ (hence the palindrome part of the name).

This means that the flare-ups or pain can come and go but it also means that it can move from one joint to another. It can affect several joints at once.

According to my consultant, about a third of people diagnosed with PR go on to develop rheumatoid arthritis, a third  get completely better  and a third carry on as they have been – with flare ups of varying intensity. Unlike Rheumatoid Arthritis joint damage is less likely with PR.

Because it is relatively rare, there is not much known about it. Treatment with “disease-modifying drugs” is often the same as with Rheumatoid Arthritis.

To read more about PR, visit: http://www.palindromicrheumatism.org/whatispr.shtml


2 responses to “About PR

  1. I recently went to a rheumatologist because my ANA was slightly elevated and I thought I might have lupus. But the doctor doesn’t think so because I don’t have the “classic” symptoms. Based on what I’ve told her about my migratory pain and low grade fevers, sometimes feeling flu-ish but never really getting the flu, she made a preliminary diagnosis of Palindromic RA.(i’m still undergoing some blood work and x-rays to rule out other auto-immune diseases). I looked it up on line and BINGO! All of my seemingly unrelated aches and pains suddenly made sense! My pain is mostly in my iliac joints (lower back) – starts in the right or left, goes to the opposite side, then ends in the middle of my lower back where it’s excruciating until it magically disappears. I also have roving pain in both knees (pain in right knee going up the stairs, pain in left knee going down the stairs), my left knee has twice swollen to the size of a soft ball and fluid removed, and sometimes in my right big toe. Wow, does that hurt! And then poof, it’s gone. This has been going on for about eight years, and most doctors chalked it up to normal wear and tear (I’m 57). But recently I felt like my hair was thinning (ah, yes, vanity – I changed shampoo and have far less hair loss), so my dermatologist sent me for ANA blood work, and thank goodness he did! I don’t know that anything will actually change for me now that I know I have PR but knowing what I have is such a relief. I was giddy with joy reading the websites on PR.

  2. There was nowhere to leave a comment on your ‘Helpful Advice’ page, so I’m doing it here. Regarding the documentation for the doctor or visit, I’m in a full-blown flare on my left knee. I had my wife take my IR thermometer-the one I use for checking the heat coming out of the vents and for making sure the pancake pan is at the right temp, and aim it at each knee. The ‘good’ knee registered 84 degrees F. The ‘bad’ knee clocked in at 101! Definitely solid evidence that something is askew…

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